Girma was born in Oakland, California in 1988 to an Eritrean immigrant family. Her father Girma Kidane Adgoy was born in Addis Ababa, Ethiopia and her mother Saba Gebreyesus was born in Asmara.[5][6] Her mother fled the Province of Eritrea to Sudan among many other Ethiopian refugees in 1983 during the Eritrean War of Independence and Ethiopian Civil War. Her mother met her father, who was born and raised in Addis Ababa, in California.[2] Haben's parents are fluent in three languages; Tigrinya, Amharic, and English.
Girma lost her vision and hearing as a result of an unknown progressive condition beginning in early childhood. In a news article Girma states, "I was frequently left out of the spotlight, unable to fully engage in a world that seemed to forget I existed."[1] She retains 1% of her sight.[7]
Growing up in the United States, Girma benefited from civil rights laws including the Americans with Disabilities Act.[2] She also had accessible technology, such as a digital Braille device—something her elder brother Mussie Gebre, who is also deafblind, did not have access to in Eritrea.[2] She graduated from Skyline High School, a mainstream public school, in 2006.[8]
At the age of 15, Girma traveled to Mali to do volunteer work, building schools with buildOn.[9]
Girma attended Lewis & Clark College, where she successfully advocated for her legal rights to accommodations in the school cafeteria.[10] She graduated from Lewis & Clark magna cum laude in 2010.[11] She then became the first deafblind student to attend and graduate from Harvard Law School, earning her J.D. in 2013. She states, "Many schools didn't know how to teach me, and I was often told I would not succeed."[10]
Career
In 2013, Girma joined Disability Rights Advocates (DRA) in Berkeley, California as a Skadden Fellow. She worked there from 2015 to 2016 as a staff attorney, working on behalf of people with disabilities.[4][3]
Girma says she became a lawyer in part to help increase access to books and other digital information for persons with disabilities.[12] She now works to change attitudes about disability around the world, including the development of accessible digital services: "Digital information is just ones and zeroes...It can be converted into any kind of format. And those people who develop these services—programmers, technology designers—they have an incredible power to increase access for people with disabilities. And I hope they use it."[2]
While working for DRA in July 2014, Haben represented the National Federation of the Blind and a blind Vermont resident in a lawsuit against Scribd for allegedly failing to provide access to blind readers, in violation of the Americans with Disabilities Act.[13] Scribd moved to dismiss, arguing that the Americans with Disabilities Act (ADA) only applied to physical locations. In March 2015, the U.S. District Court of Vermont ruled that the ADA covered online businesses as well. A settlement agreement was reached, with Scribd agreeing to provide content accessible to blind readers by the end of 2017. "I found my voice when I was given the tools to learn," Girma emphasizes. [14]
In 2014, Girma gave a talk at TEDxBaltimore.[15] She confronted TED for not readily providing captions for all of their recorded TEDx talks, including her own.[16]
On July 20, 2015, Girma met with US President Barack Obama at the White House to highlight the importance of accessible technology.[2] She provided introductory remarks on the occasion, the 25th anniversary of the Americans with Disabilities Act.[18]
In April 2016, Girma left DRA to take up non-litigation advocacy full-time.[19]
Girma enjoys participating in physical activities including surfing, rock climbing, kayaking, cycling, and dancing.[11]</ref name="oxygen-13oct2016" >
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