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The Brain Tumour Charity
The Brain Tumour Charity is a British charity dedicated to funding research, raising awareness of brain tumours, reducing diagnosis times and providing support and information for people with brain tumours, their families and friends. HistoryThe Brain Tumour Charity was created in 2013 through the merger of Brain Tumour UK,[1] the Samantha Dickson Brain Tumour Trust,[2][3] and the Joseph Foote Trust.[4][5] The Samantha Dickson Brain Tumour Trust was founded in 1996 by Neil and Angela Dickson, whose daughter Samantha died of a brain tumour when she was 16 years old.[6] Andy Foote founded The Joseph Foote Fund in 2007 after his son, Joseph, died of a brain tumour. The Foote family began raising funds for research into the causes and treatment of brain tumours. In 1997, the UK Brain Tumour Society was founded, later becoming Brain Tumour UK. ActivitiesResearch and research fundingThe Brain Tumour Charity funds a portfolio of research across the UK with the aim of doubling survival rates and reducing long-term harm by identifying better diagnostic techniques and new treatments. Funding is awarded through competitive peer reviewing processes and assessments made by their independent Grant Review and Monitoring Committee (GRAM).[citation needed] Support and information servicesThe charity provides free information and support services which allow people personally affected by brain tumours to access support. The services are focused on improving quality of life.[7] Raising awareness, policies and campaignsHeadSmartThe Brain Tumour Charity's primary awareness campaign is HeadSmart, which aims to educate the public and healthcare professionals about the signs and symptoms of brain tumours in children and young people, to reduce diagnosis times, to save lives and to reduce long term disability. The campaign's goal is to reduce diagnosis times to four weeks or less in line with NHS targets.[8][9][10] Raising awareness of brain tumoursThe charity campaigns on a range of issues that affect people affected by a brain tumour. They engage with politicians, policy makers and other influential stakeholders within the health sector, including responding to government consultations. The charity also works with like-minded organisations and networks across the UK to better understand local healthcare issues. In 2015 the charity commissioned a research project 'Living with a brain tumour',[11] in partnership with an independent research agency. The research investigated the lived experience of adults with a brain tumour. Two publications have results from the research:
ManifestosAhead of the 2015 United Kingdom general election, The Brain Tumour Charity released a manifesto on brain tumours. It outlined measures that could help survival outcomes and quality of life for those affected by brain tumours.[citation needed] The charity have also released manifestos ahead of the devolved nation elections in 2016.[14] PartnershipsThe Brain Tumour Charity collaborates with a number of other organisations, including Cancer Research UK,[15] Marie Curie Cancer Care Medical Research Council, Children with Cancer UK, Action Medical Research, and Great Ormond Street Hospital.[16] Institutions that they have funded include Imperial College London, Institute of Cancer Research,[17] Newcastle University, the University of Nottingham,[18] Queen Mary University of London, University of Birmingham, University College London, University of Glasgow and University of Leeds. See alsoReferences
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